INDIRIZZI E SITI UTILI

http://fmfpc.altervista.org/portale.htm


http://www.malattierare.iss.it

http://www.malattierare.iss.it/NEPHIRD

http://www.earsurgery.com/

http://www.plastsurg.mas.lu.se/op/msb/mikroti/mikroti_s.html

http://www.globalmednet.com/do-cdrom/Clinical/ca001.htm

http://www.globalmednet.com/do-cdrom/Clinical/MandLeng/Diner/dn001.htm

http://www.dfg.net/chpedtv/forum/messaggi/2918.htm

www.rarimanonsoli.it

www.ao.pr.it/salute/reparti/maxillo-facciale.htm

http://groups.yahoo.com/group/AtresiaMicrotia


ISTITUTO MARIO NEGRI

Centro di informazione per le Malattie Rare

Villa Camozzi

24020 RANICA (BG)

dacco@marionegri.it


e.goldenhar@aol.com : e-mail della figlia del Dott. Goldenhar (U.S.A)


http://www.whonamedit.com/doctor.cfm/2048.html


Goldenhar Syndrome Research & Information Found

P.O. Box 61643

St. Petersburg, FL 33714

813-522-5772

E-mail:76232.633@compuserve.com


http://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=164210


http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Goldenhar%20Syndrome%20%28Oculo%20Auriculo%20Vertebral%20Spectrum%29


http://www.ncbi.nlm.nih.gov/pubmed/


CENTRO DE OFTALMOLOGIA BARRAQUER

MUNTANER, 314

08021 BARCELONA ESPANA

tel. (0034) 932095311

fax (0034) 932002469

e-mail: www.co-barraquer.es


American Speech-Language-Hearing Association

10801 Rockville Pike

Rockville MD 20852

Phone #: 301-897-5700

800 #: 888-321-2742

e-mail: actioncenter@asha.org

Home page : http://www.asha.org


Anophthalmia/Microphthalmia Registry

C/O Genetics

Philadelphia PA 19141

Phone #: 215-456-8722

800 #: --

e-mail: schneida@einstein.edu

Home page:http://www.angelfire.com/mi/microphthalmia


Birth Defect Research for Children, Inc.

930 Woodcock Rd

Orlando FL 32803

Phone #: 407-895-0802

800 #: --

e-mail: abcd@birthdefects.org

Home page: http://www.birthdefects.org


Congenital Heart Anomalies, Support, Education, & Resources

2112 North Wilkins Road

Swanton OH 43558

Phone #: 419-825-5575

800 #: --

e-mail: chaser@compuserve.com

Home page:http://www.csun.edu/~hfmth006/chaser


EA/TEF Child and Family Support Connection, Inc.

111 West Jackson Boulevard

Chicago IL 60604-3502

Phone #: 312-987-9085

800 #: --

e-mail: info@eatef.org

Home page: http://www.eatef.org


Ear Anomalies Reconstructed: Atresia/Microtia Support Group

72 Durand Road

Maplewood NJ 07040

Phone #: 973-761-5438

800 #: --

e-mail: atresiamicrotia-subscribe@yahoogroups.com

Home page: N/A


International Children's Anophthalmia Network (ican)

5501 Old York Road

Philadelphia PA 19141

Phone #: 215-456-8722

800 #: 800-580-4226

e-mail: aemcgenetics2@hotmail.com

Home page: http://www.anophthalmia.org




March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains NY 10605

Phone #: 914-428-7100

800 #: 888-663-4637

e-mail: Askus@marchofdimes.com

Home page:http://www.marchofdimes.com


NIH/National Eye Institute

Building 31 Rm 6A32

Bethesda MD 20892-2510

Phone #: 301-496-5248

800 #: --

e-mail:2020@nei.nih.gov

Home page: http://www.nei.nih.gov/


NIH/National Heart, Lung and Blood Institute Information Center

P.O. Box 30105

Bethesda MD 20824-0105

Phone #: 301-592-8573

800 #: --

e-mail: nhlbiinfo@rover.nhlbi.nih.gov

Home page: N/A


National Association for Parents of the Visually Impaired

P.O. Box 317

Watertown MA 02472

Phone #: 617-972-7441

800 #: 800-562-6265

e-mail: napvi@perkins.pvt.k12.ma.us

Home page: http://www.spedex.com/napvi


National Kidney Foundation

30 East 33rd Street

New York NY 10016

Phone #: 212-889-2210

800 #: 800-622-9010

e-mail: N/A

Home page: http://www.kidney.org


The Arc (a national organization on mental retardation)

1010 Wayne Ave

Silver Spring MD 20910

Phone #: 301-565-3842

800 #: 800-433-5255

e-mail: info@thearc.org

Home page: http://thearc.org/


http://www.globalmednet.com/do-cdrom/Clinical/ca001.htm




1 http://www.faces-cranio.org/Disord/Hemi.htm

2 http://www.faces-cranio.org/Disord/Golden.htm

3 http://members.tripod.com/~BarbMiles/

4 "http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Goldenhar%20Syndrome%20

5 http://www.sos.se/smkh/1999-29-094/1999-29-094.htm

6 http://www.erlanger.org/craniofacial/book/hemifacial/hemifacial1.htm


http://www.goldenhar.org.uk/ uk

http://groups.yahoo.com/group/goldenharadults/

http://www.indiana.edu/~pietsch/goldenhar.htmlUSA

http://www.worldcf.org/fc_2.html

http://www.faces-cranio.org/Disord/Golden.htm

http://www.cafamily.org.uk/Direct/g27.html

http://deafness.about.com/cs/featurescauses/a/goldenharsynd.htm

http://www.icomm.ca/geneinfo/goldenhar.htm

http://www.hon.ch/HONselect/RareDiseases/FR/C05.116.099.370.231.576.410.html

http://www.deafblind.com/goldenha.html

http://www.familyvillage.wisc.edu/lib_gold.htm

http://home.att.net/~jnozum/Goldenh.htm

http://www.wa-eyemd.org/Goldenhar's%20syndrome.htm

http://www.atoute.org/dcforum/DCForumID5/8798.html

http://news.bbc.co.uk/1/hi/health/medical_notes/g-i/1855282.stm

http://my.webmd.com/hw/health_guide_atoz/shc29gol.asp

http://www.thefetus.net/page.php?id=418

http://www.uic.edu/depts/doms/rounds/rounds-36.html

http://omni.ac.uk/browse/mesh/C0018037L0018037.html


http://salud.discapnet.es/discapacidades+y+deficiencias/deficiencias+auditivas/sindrome+de+goldenhar+14/


http://www.chu-rouen.fr/navimesh/G/navigoldenharsyndrome.html

http://www.chu-rouen.fr/ssf/pathol/goldenharsyndrome.html

http://www.vulgaris-medical.com/v1/?p=index_fiche&id_article=2119

http://www.atoute.org/dcforum/DCForumID5/8355.html